What are the first signs of thyroid eye disease?

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asked Oct 30, 2024 in Eye Health by Lorenne (720 points)
What are the first signs of thyroid eye disease?

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answered Oct 30, 2024 by Hazel1961 (8,400 points)
The first signs of thyroid eye disease are eye discomfort, eye irritation and eye redness.

Other signs of thyroid eye disease are eyelid retraction in which your upper eyelid is positioned too high or your lower eyelid is too low and exposes the eye and is often the first sign of thyroid eye disease.

Watery eyes, dry eyes and itchy eyes are also common with thyroid eye disease as well as gritty feeling of the eyes and sensitivity to bright lights.

Other common symptoms and signs of thyroid eye disease are pain in or behind the eye which especially occurs when looking sideways, looking down or looking up, difficulty moving the eyes, changes of the eyes appearance including staring or bulging, blurred or double vision and bags under the eyes.

You can slow the progression of thyroid eye disease with a drug called Tepezza which is given as an infusion.

Although Tepezza cannot reverse or prevent thyroid eye disease it can help prevent it from getting worse.

Managing thyroid conditions and keeping up with thyroid medications can help to slow or stop thyroid eye disease from progressing and avoiding radioiodine therapy unless necessary and avoid smoking.

Each infusion of Tepezza is given once every 3 weeks which means your treatment with TEPEZZA will take about 5 months.

Tepezza works as quickly as 6 weeks after 2 infusions in which most people had less eye redness, less eye bulging and less eye swelling.

Some people it may take a bit longer than 6 weeks for the Tepezza to work.

Tepezza stays in your system and body for between 80 days to 100 days or 11 weeks to 14 weeks in which Tepezza fully leaves your body.

It takes around 4 to 5 half life's for a medicine including Tepezza to leave your system and leave the body.

Tepezza has been on the market since January 21st 2020 when it was approved by the U.S. Food and Drug Administration for the treatment of thyroid eye disease.

Tepezza is given as an IV infusion into the arm and takes around 90 minutes.

Tepezza is covered by insurance.

However specialty medicines like TEPEZZA require additional approval from your insurance provider before you can begin treatment and have the insurance cover the cost of Tepezza.

The approval process for insurance to cover Tepezza can take up to 90 days from the time your doctor prescribes TEPEZZA until you get your first infusion.

The cost of a Tepezza infusion without insurance is $17,929.00 which comes in a supply of 1 500 mg powder per injection.

With insurance you may pay a small copay or no copay depending on your insurance.

The infusion Tepezza is in a class of drugs that is called monoclonal antibodies and is used to treat thyroid eye disease also known as Grave's eye disease.

Common side effects of Tepezza include hair loss, changes in menstruation, nail problems, dry skin, taste changes, headache, hearing problems, high blood sugar, feeling tired, diarrhea, hair loss, nausea, muscle spasms and muscle cramps.

People who should not take Tepezza are people that are diabetic or may be pre diabetic or become diabetic and if you have Crohn's disease or Irritable Bowel Syndrome.

Tepezza can make irritable bowel syndrome and Crohn's disease worse and can even spike blood sugar.

The drug Tepezza is injected into the arm through an IV infusion.

Tepezza is not just an injection but is given through IV infusion and is given as 1 infusion every 3 weeks with a total of 8 infusions of Tepezza.

The cost of a Tepezza infusion is $17,929.00 which comes in a supply of 1 500 mg powder per injection.

Tepezza is a prescription medication that is used for treating thyroid eye disease in adults.

The drug Tepezza reduces eye bulging and double vision and improves other symptoms of thyroid eye disease including swelling, redness and eye pain.

Tepezza is given and administered through an IV by inserting a needle into your arm where Tepezza is then enters your body as an infusion.

The drug Tepezza is given as 1 infusion every 3 weeks with a total of 8 infusions of Tepezza.

Side effects of Tepezza include dry skin, headache, taste changes, hearing problems, high blood sugar, feeling tired, diarrhea, hair loss, nausea, muscle spasms and muscle cramps.

Also if you have inflammatory bowel disease the drug Tepezza can make the inflammatory bowel disease worse.

And if you have diabetes or use insulin, the drug Tepezza can increase your blood sugar levels.

You may be a good candidate for Tepezza if.

You have active thyroid eye disease (TED).
Your clinical activity score (CAS) is greater than 4.
You are experiencing symptoms such as inflammation, proptosis, or double vision.
You do not have inflammatory bowel disease (Crohn's or ulcerative colitis).

The cost for Tepezza trbw 500 mg intravenous powder for injection is around $17,929.00 for a supply of 1 powder for injection, depending on the pharmacy you visit.

Tepezza is most often covered by insurance.

However specialty medicines like TEPEZZA require additional approval from your insurance provider before you can begin treatment.

The approval process for insurance to cover Tepezza can take up to 90 days from the time your doctor prescribes TEPEZZA until you get your first infusion.

Each infusion of Tepezza is given once every 3 weeks which means your treatment with TEPEZZA will take about 5 months.

After you start to see results with TEPEZZA, it may be tempting to stop treatment.

But for the best results, it's recommended that you receive all 8 infusions of Tepezza as prescribed by your doctor.
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answered Nov 1, 2024 by kkkloik (3,720 points)
When I was dealing with thyroid eye disease, the first signs I noticed were some swelling around my eyelids and a weird pressure behind my eyes. It felt like I had a constant heaviness, which was really annoying. I also experienced some redness and dryness, especially when I was staring at screens for too long. It was pretty unsettling, and I ended up talking to my doctor about it, which helped me get on track with managing those symptoms. If anyone else is experiencing something similar, it’s definitely worth mentioning to a healthcare professional.

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