Do hemophiliacs live in pain?

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asked Oct 22, 2023 in Pain by lifeashelly (1,860 points)
Do hemophiliacs live in pain?

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answered Oct 23, 2023 by 12iroanges (25,000 points)
Hemophiliacs with severe hemophilia usually have and live with acute and chronic pain.

Hemophiliacs with less severe hemophilia may live with some pain but not always.

Hemophilia can cause brain damage when you have head bleeds associated with the hemophilia.

Some people with hemophilia can have bleeding that occurs around and in the brain either as a result of an injury or with a cause that is not known.

You cannot see the brain bleeding inside the head.

Things that make hemophilia worse are high fat foods and aspirin or other NSAIDS.

High saturated fats, high calorie foods and high fat oils also can worsen hemophilia so they should be avoided.

A typical day for someone with hemophilia is pretty similar to someone's daily life without hemophilia.

Some people with hemophilia have mobility problems and unexpected bleeding.

With modern therapeutics, people with hemophilia can lead fairly normal lives.

There are, however, people who respond less well to therapy.

These people have a higher incidence of uncontrolled bleeding, joint disease, and hospitalization.

You can live a full life with hemophilia with medications and proper treatment.

Hemophiliacs can have surgery although the surgery on a hemophiliac should be done in a full fledged hospital.

All patients with classic hemophilia, regardless of the severity of the disease, are at risk of excessive bleeding after trauma or during surgery.

There is genetic testing for hemophilia which can confirm if either you or a child is a carrier of hemophilia.

Hemophiliacs can take Tylenol and other acetaminophen medications but not NSAID medicines such as Aspirin.

If a hemophiliac takes aspirin it can worsen and cause bleeding so if you have hemophilia you should not take aspirin.

You can however take Tylenol as it does not cause bleeding.

You cannot prevent getting hemophilia as hemophilia is a genetic condition.

However avoiding Aspirin and NSAIDS can prevent the hemophilia from worsening.

Someone with hemophilia can have a child although the mother can pass the hemophilia down to the child.

When someone with hemophilia cuts themselves they may have trouble stopping the bleeding although with small cuts and scrapes the bleeding usually stops just fine but may take a bit longer in some cases for the bleeding to stop.

In larger cuts it becomes much harder to stop the bleeding when you have hemophilia.

The sports that hemophiliacs should avoid are high risk sports such as lacrosse and football, soccer.

Swimming, golf and baseball are usually okay for hemophiliacs and are rated as low or moderate risk sports.

Some hemophiliacs are disabled and you can usually get disability benefits from hemophilia when it's severe enough to prevent you from working a job.

Hemophilia is from inbreeding and is almost always inherited from a parent to a child.

Hemophilia A and Hemophilia B are both inherited in the same way.

Although an individual's hemophilia can usually be traced in the ancestry, in about 30% of cases there is no family history of the disorder, and the condition is speculated to be the result of spontaneous mutation in an ancestor.

The triggers of hemophilia is a mutation or change in one of the genes which provide the instructions to make the clotting factor proteins which are needed to form blood clots.

Due to the change or mutation it can prevent the clotting proteins from working correctly or to be missing altogether.

The genes are located on the X chromosome.

Another name for hemophilia is Christmas disease named after the patient Stephen Christmas who was the first person diagnosed with hemophilia in 1952.

Hemophilia B is also known as factor IX hemophilia which is a rare genetic disorder in which the blood does not clot properly.

The main treatment for hemophilia is a clotting factor concentrate that is given into your vein which replaces the missing blood clotting factor so the blood can clot like it properly should.

The 3 types of hemophilia are Hemophilia A, Hemophilia B and Hemophilia C.

Hemophilia A is the most common type of hemophilia.
Hemophilia B happens when you don't have enough clotting factor 9 (factor IX.)
Hemophilia C is also known as factor 11 (factor XI) deficiency.

The parent that carries hemophilia is the mother.

Hemophilia can get worse with age and people who are aging and getting older can encounter problems which can cause bleeding in joints and other problems.

Over time, recurrent bleeding into joints and muscles can cause permanent problems such as arthritis, chronic pain and joint damage resulting in poor control of balance and falls which ultimately worsen quality of life.

Hemophilia sometimes does skip a generation but not always.

People who are most likely to get hemophilia are males and males who have family who also have hemophilia.

Hemophilia in females is very rare with less than 0.5 percent to a little more than 1 percent of females developing hemophilia.

The 3 symptoms of hemophilia are.

Bleeding of the mouth and gums as well as bleeding which is hard to stop when loosing a tooth.
Bleeding into the skin (bruising) or muscle and soft tissue that causes a build up of blood in the area which is called a hematoma.
Bleeding into your joints.

When you have hemophilia the hemophilia condition causes spontaneous bleeding and bleeding more that follows surgery or injuries.

Hemophilia is most often an inherited condition and bleeding disorder that causes the blood to not clot properly to prevent bleeding.

The most common hemophilia in the US is Hemophilia A which is 4 times more common as hemophilia B.

Hemophilia can affect all ethnic groups and races.

The parent that carries hemophilia is the mother who passes the hemophilia gene to the child.

Although it is the father's sperm which determines if the child will become a boy or girl and it is not the fault of one parent because both parents contribute to the outcome.

Hemophilia is not curable although there are medications that people can take to help stop bleeding with hemophilia.

The gender that hemophilia is most common in is males although females also get hemophilia.

The life expectancy of someone with hemophilia is around 10 years less than a person without hemophilia.

The symptoms of hemophilia are.

Nosebleeds without a known cause.
Blood in your stool or urine.
Pain, swelling or tightness in your joints.
Unusual bleeding after vaccinations.
Many large or deep bruises.
Unexplained and excessive bleeding from injuries or cuts or after dental work or surgery.
And in infants unexplained irritability.

Hemophilia is a bleeding disorder that is most often inherited in which the blood does not clot properly.

This can lead to spontaneous bleeding as well as bleeding following injuries or surgery.

Blood contains many proteins called clotting factors that can help to stop bleeding.

It involves special proteins called coagulation, or clotting factors.

You may have a higher chance of excess bleeding if one or more of these factors are missing or aren't functioning like they should.

Hemophilia is caused by the lack of clotting factor VIII or IX in the blood.

A person with hemophilia has problems when a fibrin clot is needed to stop the bleeding.

People with hemophilia do not have enough of either clotting factor 8 or 9.

Because of this, the fibrin clot is not made or is so thin that the bleeding goes on.

In many cases when there is no family history of hemophilia, the first sign of the condition is prolonged bleeding after circumcision.

Other common symptoms of hemophilia that you—or your child—might experience include: Joint bleeding. Soft tissue bleeding.

The symptoms usually begin with a tingling feeling of irritation and mild pain in the affected joint – most commonly the ankles, knees, and elbows.

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