Has anyone survived diffuse midline glioma?

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asked Aug 23, 2023 in Diseases Conditions by GordonTom (3,220 points)
Has anyone survived diffuse midline glioma?

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answered Oct 6, 2023 by RebeccaEdnie (8,360 points)
Some people have survived diffuse midline giloma although most people die within 5 years of diagnoses.

A midline tumor is a primary central nervous system tumor which means they begin in the brain or spinal cord.

The diffuse midline giloma is a rare subtype of glial tumor.

In order to diagnose a glial tumor a piece of the tumor tissue will be removed during surgery when possible.

When a malignant tumor remains compact and does not have roots, it is said to be encapsulated.

When an otherwise benign tumor is located in a vital area of the brain and interferes with vital functions, it may be considered malignant (even though it contains no cancer cells).

A doctor cannot tell if a tumor is cancerous by looking at it although the look of the tumor can show that the tumor may be cancerous.

However the only way to tell if the tumor is indeed cancerous is to remove the tumor or part of the tumor and study it to diagnose it as cancer.

Tumor size does determine the stage of the tumor and stage of the cancer if it's a cancerous tumor.

The smaller the tumor size the lower the stage of tumor and the larger the tumor the higher the stage of tumor is.

A 5 cm tumor is stage 2 tumor.

Larger than 4 cm is considered stage 3 tumors.

A 5 cm tumor is big for a tumor as any tumor over the size of 1 cm to 2 cm is considered a big or large tumor.

Large tumors can be removed as long as they have not in areas such as the brain or other areas that could be risky to remove or if they have spread.

Large tumors are removed through surgery where the surgeon cuts you open at the area where the tumor is and then surgically cuts the large tumor out and then sews your skin back up.

Benign tumors do not need to be removed unless they are causing pain or other problems.

Cancers that can be surgically removed are head and neck cancers, esophageal cancer, brain cancers, pancreatic cancer, colerectal cancer and breast cancer.

After removing a tumor the surgeons will either dispose of the tumor through medical waste or may want to send it off to be analyzed.

Tumors are removed through surgery by cutting an incision into your skin where the tumor is located and then surgically removing the tumor.

In some cases a laparoscopic surgery or robotic surgery can be used to remove some tumors.

The medicine that shrinks tumors are anti angiogenic drugs which stops tumors from growing their own blood vessels and can slow the growth of the cancer or even shrink it.

The cost to remove a benign tumor ranges from $3,093.00 to a much as $7,193.00

The kind of doctor that removes tumor is a surgeon.

Either surgical oncologists or general surgeons will remove tumors.

Chemo is necessary after cancerous tumor removal as the chemo after surgery is done to lower the chance of the cancer coming back in the future which is called adjuvant treatment.

Surgery is better than chemotherapy if the cancer tumor is easily accessed and localized and can be removed.

However for cancer that is not easily accessible and not localized the chemotherapy is better for the cancer treatment.

Oncologists push chemo as chemo or chemotherapy can in most cases completely get rid of cancer without it possibly coming back.

Examples of cancers that are killed and treated successfully with chemotherapy are testicular cancer, leukemia and lymphoma and some others.

Medicare does pay for chemo and covers the cost of chemo when you have cancer.

Medicare Part A covers inpatient hospital stays and care in a skilled nursing home, hospice care and some home health care.

Medicare Part B will cover certain outpatient care, medical supplies, preventative services and certain doctor services.

Chemo is covered by insurance as chemo is a medically necessary procedure although you may need to pay a small portion of the chemo cost although some chemo is covered by some health insurance policies.

Radiotherapy is cheaper cancer treatment than chemotherapy although radiotherapy is mostly used for treating rectal cancer and chemotherapy is used for treating other forms of cancer.

The price of chemotherapy ranges from $1,000.00 to as much as $12,000.00

With insurance you may only pay $136.00 to $169.00 out of pocket for the chemotherapy treatment.

Most people will start chemotherapy within 30 days to 90 days after surgery.

Some people may start chemo within a few weeks after surgery but most people wait until at least 30 days after surgery to begin chemotherapy.

Chemotherapy is most often used when the cancer gets into stage 2 after any other treatments don't help.

Although even at stage 1 cancer chemotherapy may be used as the sooner you start chemotherapy the higher chance you have at getting rid of the cancer before it progresses.

In general, regimens for stage 3 cancers typically start with either surgery or treatment to shrink the tumor before surgery, such as chemotherapy, radiation, or a combination of both.

Chemo doesn't shorten your life and in some cases chemo can extend your life.

Sometimes chemo may get rid of certain cancers completely while other cancers may remain but be prevented from getting worse while on chemo.

Some people on chemo live for 3 to 12 months on chemo and for others they may live 2 to 4 years on chemo.

And in some cases the chemo may actually get rid of the cancer completely and the person can live a normal lifespan.

Cancer can still spread even while someone is on chemo.

While most chemo is successful at getting rid of cancer and keeping the cancer from spreading it's still possible for cancer to spread when on chemo.

You can sleep next to someone with chemo and even have sex with someone with chemo as long as the person is feeling up to it.

The chemo poses very little risks to other people around the chemo patient.

Cancer is least likely to develop in people under the age of 20 years of age and those over 80 years of age.

The incidence rates for cancer overall climb steadily as age increases, from fewer than 25 cases per 100,000 people in age groups under age 20, to about 350 per 100,000 people among those aged 45–49, to more than 1,000 per 100,000 people in age groups 60 years and older.

You cannot smell cancer itself but sometimes tumors that develop with cancer can cause some unpleasant odors.

For the average person it's not easy to detect the smell of cancer, but they may notice changes in the odor of body fluids when they're receiving treatment for cancer.

The sense of smell may be more sensitive to people undergoing cancer treatments.

Strong odors, such as those in foods, are especially offending.

The slowest growing cancer is Carcinoid Cancer.

You can have Carcinoid cancer for several years without knowing it which is why it's called a slow growing cancer.

The deadliest cancers are lung cancer, colerectal cancer, breast cancer, pancreatic cancer and prostate cancer.

Lung and bronchus cancer is responsible for the most deaths with 130,180 people expected to die from this disease.

That is nearly three times the 52,580 deaths due to colorectal cancer, which is the second most common cause of cancer death.

Pancreatic cancer is the third deadliest cancer, causing 49,830 deaths.

The five types of cancer are Lymphoma, Leukemia, Melanoma, Carcinoma and Sarcoma.

When a cancer patient stops eating or drinking it means the cancer patient is in the last stages of the cancer is the cancer patients body is shutting down and preparing for death.

Signs that a cancer patient is dying include.

    Breathing stops.
    Blood pressure cannot be heard.
    Pulse stops.
    Eyes stop moving and may stay open.
    Pupils of the eyes stay large, even in bright light.
    Control of bowels or bladder may be lost as the muscles relax.

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