What is the most common late stage symptom of pulmonary fibrosis?

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asked Jun 10, 2023 in Diseases Conditions by Seesstrunk (640 points)
What is the most common late stage symptom of pulmonary fibrosis?

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answered Jun 10, 2023 by Amberwell (18,150 points)
The most common late stage symptom of pulmonary fibrosis is feeling increasingly out of breath and the breathing gets noticeably worse.

Towards the end with pulmonary fibrosis, you may be sleepy or unconscious much of the time.

You may also lose interest in eating and drinking and your breathing pattern may change and eventually, your skin may become pale and moist, and you will become very drowsy.

You may wish to consider end-of-life care as well.

Oxygen levels with pulmonary fibrosis should be above 90 percent throughout the day and also at night.

People with pulmonary fibrosis can often feel breathless.

A build-up of scar tissue in your lungs – as with pulmonary fibrosis – restricts the transfer of oxygen from the tiny air sacs in your lungs into your blood.

This causes low levels of oxygen in the blood.

The climate that is best for pulmonary fibrosis is a climate that is in the mid 70s F.

Anything above 70 F can be bad for people with pulmonary fibrosis.

You should keep your blinds drawn and your windows closed during the day and if your temperature drops in the evening then you should take advantage of a cross breeze and open windows.

The best position to sleep in with pulmonary fibrosis is to sleep with your head higher than your body and lay on your side.

You should also use a wedge or pillows to keep you in this position as doing so opens your airway and helps you breathe.

The best treatment for pulmonary fibrosis is medications such as nintedanib (Ofev) and pirfenidone (Esbriet) which are two FDA approved medications for treatment of idiopathic pulmonary fibrosis.

An experimental anticancer drug called saracatinib also shows promise as a treatment for Idiopathic Pulmonary Fibrosis (IPF), a chronic and often fatal condition that causes scarring or fibrosis of the lungs and makes breathing difficult.

You can also get a lung transplant for pulmonary fibrosis.

A lung transplant for Pulmonary Fibrosis can improve life expectancy and quality of life.

There has been a steady improvement internationally in the number of years' people survive post-transplant in the past 20 years.

The median life expectancy after bilateral sequential lung transplantation is just under eight years.

Pulmonary fibrosis is a lung disease that occurs when lung tissue becomes damaged and scarred.

A diagnosis of PF can be very scary.

When you do your research, you may see average survival is between three to five years.

This number is an average.

There are people who live less than three years after diagnosis, and others who live much longer.

The first signs of pulmonary fibrosis include.

Shortness of breath, particularly during exercise.
Dry, hacking cough.
Fast, shallow breathing.
Gradual unintended weight loss.
Tiredness.
Aching joints and muscles.
Clubbing (widening and rounding) of the tips of the fingers or toes.

Exposure to toxins like asbestos, coal dust or silica (including workers in the coal mining and sandblasting industry) can lead to pulmonary fibrosis.

The lung scarring that occurs in pulmonary fibrosis can't be reversed, and no current treatment has proved effective in stopping progression of the disease.

Some treatments may improve symptoms temporarily or slow the disease's progression.

Others may help improve quality of life.

Certain medications (amiodarone, bleomycin, nitrofurantoin, to name a few) list pulmonary fibrosis as a side-effect.

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