What is the life expectancy of someone with NF2?

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asked Apr 4 in Diseases Conditions by HappyNappin (2,120 points)
What is the life expectancy of someone with NF2?

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answered Apr 4 by Gemkow (7,780 points)
The life expectancy of someone with NF2 is between 10 to 20 years although some people with NF2 have longer as it can depend on the persons age and overall health.

The symptoms of neurofibromatosis type 2 include balance issues, problems with facial expressions, Tinnitus or ringing in the ears, hearing loss that can begin as early as the teen years and dizziness.

The signs and symptoms of neurofibromatosis type 2 will most often appear during adolescence or in a person's early twenties, although the symptoms can begin at any age.

Neurofibromatosis type 2, also called NF2-related schwannomatosis, is a hereditary condition that is most commonly associated with bilateral vestibular schwannomas that is also known as acoustic neuromas.

These tumors are benign (noncancerous) tumors that occur on the nerves for balance and hearing leading to the inner ear.

The life expectancy of a person with neurofibromatosis type 2 is between 10 years to 20 years depending on the persons age.

People with neurofibromatosis type 2 typically present with tumor-related symptoms around 20 years of age.

The most common intracranial tumor associated with NF2 is vestibular schwannoma which is typically bilateral in these people.

And these people typically present with tinnitus, sensorineural hearing loss, and balance problems.

The symptoms of NF1 are often mild, and people who have it are able to lead full and productive lives.

Sometimes, pain and deformity can lead to significant disability.

The NF2 outlook depends on your age at the start of the disease and on the number and location of tumors.

Some can be life-threatening.

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